Media recruitment in dementia research in a middle-income country

Simone Mota, Victoria T. Souza, Marcia L. F. Chaves, Raphael M. Castilhos

Abstract

The inclusion of elderly people without dementia is essential for Alzheimer's disease research, both from the perspective of biomarkers development and for the potential therapy’s evaluation. Recruitment of individuals in the early stages of the pathological process of Alzheimer's disease is arguably difficult, especially regarding racial and ethnic minority groups.

Full Text:

PDF

References

Jack CR, Bennett DA, Blennow K, Carrillo MC, Dunn B, Haeberlein SB, Holtzman DM, et al. NIA-AA Research Framework: Toward a biological definition of Alzheimer's disease. Alzheimers Dement. 2018;14(4):535-62.

Stout SH, Babulal GM, Johnson AM, Williams MM, Roe CM. Recruitment of African American and Non-Hispanic White Older Adults for Alzheimer Disease Research Via Traditional and Social Media: a Case Study. J Cross Cult Gerontol. 2020;35(3):329-39.

Dougall GJ, Simpson G, Friend ML. Strategies for research recruitment and retention of older adults of racial and ethnic minorities. J Gerontol Nurs. 2015;41(5):14-23.

Safety and Efficacy Study of Gantenerumab in Participants With Early Alzheimer’s Disease (AD), 2021. Available at: https://clinicaltrials.govshow NCT0373. Accessed on 8 May 2021.

Camozzato AL, Kochhann R, Godinho C, Costa A, Chaves ML. Validation of a telephone screening test for Alzheimer's disease. Neuropsychol Dev Cogn B Aging Neuropsychol Cogn. 2011;18(2):180-94.

Baccaro A, Segre A, Wang YP, Brunoni AR, Santos IS, Lotufo PA, et al. Validation of the Brazilian-Portuguese version of the Modified Telephone Interview for cognitive status among stroke patients. Geriatr Gerontol Int. 2015;15(9):1118-26.

Brazilian Institute of Geography and Statistics. Continuous PNAD - Continuous National Household Sample Survey, 2021. Available at: https://www. ibge.gov.br/estatisticas/sociais/trabalho/9171-pesquisa-nacional-por-amostra-de-domicilios-continua-mensal.html. Accessed on 8 May 2021.

Nishijima M, Ivanauskas TM, Sarti FM. Evolution and determinants of digital divide in Brazil (2005-2013). Telecomm Policy. 2017;41(1):12-24.

Livingston G, Huntley J, Sommerlad A, Ames D, Ballard C, Banerjee S, et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet. 2020;396(10248):413-46.